Napping in the hotel between appiontments with daddy
Hanging out with Luke in labs
Macie had her two year post transplant check-up on Thursday. All labs, x-rays, the echo and EKG came back with good results. Dr Canter (Macie's Cardiologist) gave Mike and I great piece of mind when he told us his babies don't reject, "the rejection is ZERO with babies like Macie". He feels very confident in Macie! We met with an endocrine doctor, Dr Wagner to discuss growth hormone. Macie is still very tiny and has not caught-up to the charts (heart babies are often tiny). Macie is a candidate for growth hormone, but we will wait until she is 4yrs to re-evaluate. Mike and I were impressed with Dr Wagner, she seemed very connected to her patients. She feels we will see good growth with the hormone, when it is time.
Macie had a date with Luke, Wednesday evening. They were so cute together. We enjoyed our visit with Luke and his family. Luke had a good check-up too!
During Macie's Celebration Of Life Party earlier this month we collected over 80 blankets to take to the Cardiac Floor at Children's! During her check-up we took the blankets to the floor and Macie passed some out. She LOVED it! Especially when she got to see the babies. The families really appreciated the blankets. It was hard at first going back up to the cardiac floor where Macie spent so much time. Mike and I were grateful to be able to share some of Macie's story and give inspiration to other families. There are so many children in the CICU and on the floor who need prayers.
We had to sneak in a shopping trip while in STL. Our Macie LOVES to shop. We went to STL Mills. Macie and I left dad in Cabals and we took off. Needless to say she ended up with a few new things.
Thank you for keeping Macie in your prayers. We are blessed with each day.
Macie had a date with Luke, Wednesday evening. They were so cute together. We enjoyed our visit with Luke and his family. Luke had a good check-up too!
During Macie's Celebration Of Life Party earlier this month we collected over 80 blankets to take to the Cardiac Floor at Children's! During her check-up we took the blankets to the floor and Macie passed some out. She LOVED it! Especially when she got to see the babies. The families really appreciated the blankets. It was hard at first going back up to the cardiac floor where Macie spent so much time. Mike and I were grateful to be able to share some of Macie's story and give inspiration to other families. There are so many children in the CICU and on the floor who need prayers.
We had to sneak in a shopping trip while in STL. Our Macie LOVES to shop. We went to STL Mills. Macie and I left dad in Cabals and we took off. Needless to say she ended up with a few new things.
Thank you for keeping Macie in your prayers. We are blessed with each day.
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