Daddy's Birthday

Elmo Cupcakes

Elmo Cake

Elmo panties on her head

Macie and Alex together at last

For Mike's birthday Macie and I made Elmo Cupcakes and a Cake. The things we do for our little ones. Needless to say Macie LOVED them! Macie even got a new outfit and barney movie for Mike's birthday? Daddy was happy to share his day.

Macie has been doing very well. I think her energy is back plus! We will go back to STL for some labs next week.

Coles County Heart Walk

Coles County Heart Walk

The Coles County Heart Walk is set for Sunday February 1st at the Cross County Mall in Mattoon at 1pm. Macie will be featured as the child survivor. The Heart Walk raises funds for heart disease awareness and research. We will be teaming up Consolidated Communications to walk and to raise funds. Anyone interested in donating can contact us via e-mail (mschnepper2003@yahoo.com) phone (217)925-5753 or at the walk.

We would love to see you there!

Michael, Michelle & Macie

We need tips on getting our 2year-old to keep her mask on!
Breakfast at the hospital.
Macie loved picking out her own Breakfast.

We needed a driver, who better than Macie.

Macie's new heart BFF, Adah.

Home Sweet Home

Macie Playing in the Child Life Center, She LOVED it!

She would wake-up in the middle of the night asking to go play!

Macie LOVED these cars so much the volunteers gave her a brand new pack to bring home.
She wanted all the orange and blue cars, our little Illini girl.

Napping with her baby

Dr Schnepper

Lunch with a view

Macie just getting in her room. Snacking with daddy.


At home reading the Night Before Christmas with daddy on Christmas Eve

Sneaking Santa's Cookies

Christmas in STL

Macie was admitted to the hospital today. You can log onto her caringbridge site for updates www.caringbridge.org/visit/maciefayschnepper

Bacterial Pneumonia

Macie continued with a fever over the weekend. She spent just about all day yesterday in our arms with no energy. When her temp would get over 100 she would break out in a rash. We took her in to our local pediatrician who looked her over and then sent us over to the hospital for a chest x-ray ........... the results Bacterial Pneumonia. After Macie's doctor here talked with the transplant team in STL they all decided she can stay at home on an antibiotic. We are blessed to have such a great team caring for Macie.

Macie started feeling better late afternoon. She ate well and spent the rest of the evening dancing, playing with ELMO, and tossing snow balls (socks) at me. It was so good to see her smile and play!

Macie will need to stay in over the holiday. So we will be missing all the family get togethers. I would LOVE to have her all dressed-up in her Christmas outfit complete with matching bracelet celebrating. But, we will stay home and read the Christmas Story and The Night Before Christmas in our PJ's. We are just thankful to be able spend Christmas together, at home.

Merry Christmas

Merry Christmas

It's day 13 of Macie running a temp. She is doing well, eating and drinking, resting in my arms. We have been talking to her pediatrician here and the transplant doctors in SLT over the past week in a half. She had labs taken last week, there all back and look as if she just has a virus she having trouble kicking. Yesterday she went about 14 hours without a temp then spiked one in the afternoon breaking out in a rash. Overnight she spiked again. Today we thought she had kicked it and then spiked again. Hopefully she is on the tail end of this virus. If she continues with a temp over the weekend STL wants to see her on Tuesday. Please send up an extra prayer for Macie, please pray this virus passes.

Macie's babies have all been sick too. We have to give them medicine and take their temps. And Oh My, the diapers the babies have been having. Good thing for mom and dad Macie is potty trained! Our girly, girl.


Macie and I had 3 snow days this week. Daddy is a little jealous. Macie keeps asking to go to school and for her "Heder" (Heather) and "Alex", her sitter. So now were off until after Christmas. She has been filling her days up with books, puzzles, Elmo and getting her nails done.

Our beauty queen continues to have a love of fashion. The trouble is the looks are her own creation. She LOVES orange, zippers, pockets and jeans? She will wake-up in the middle of the night, usually around 4am asking for a specific fashion piece (heart sweater, orange shirt, etc). This has been happening twice a week for some time now.

We hope everyone has a wonderful Christmas.